20th May to 26th May
Well we are back in England. I was quite excited about flying back until I realised it was only me and Mummy coming back. I had to leave Daddy in Gibraltar. It was a bit strange coming back too because we had to get a taxi to Nana's house and when we got there Nana and grandad weren't. Mummy and I had to sleep in their house without them.
On Tuesday some nurses came to Nana's house to take some of my blood because I was going to start them next bit of my treatment and in case my blood wasn't any better than last week they wanted to check it was OK. After they'd gone Mummy and I walked into the village. I tried to walk as far as I could and there were lots of snails and interesting things to look at on our walk.
When Nana and Grandad got back home (I was asleep from my long walk)they were with my Auntie and Mummy had packed some of our things so that we could go and stay at Aunty's house. I'm starting the Delayed Intensification and we are staying close to the hospital so I don't have to travel so far everyday.
On Wednesday when I woke up I played in my Aunty's garden (mostly chasing their cat Paddy). At the hospital we found out my blood was doing well and that I was having a little sleep and a lumber puncture. We weren't too long and Uncle came to collect us as normal after work. I wasn't happy because they had put the NG tube in my nose again and I don't like it. When I got to my Aunty's house my big cousin had to go and play cricket and I got to watch DVD's with my other cousin.
Thursday I also had to go into hospital and have 2 different medicines in my wiggles but I didn't take very long at all and I got to go to the Armouries to see my elephant in armour. And I saw a sword fight. The weather wasn't so nice so I sat on the sofa when I got home. I also felt a bit sick.
Friday I had to go to the hospital AGAIN. They gave me an injection in my leg. Auntie came and collected me because I was very tired and it was raining. My Biggest cousin had an exam in the morning when I was at the hospital so she watched DVD's with in in the afternoon whilst it was too wet to play outside. I felt very tired and sick and not very happy. Auntie took me home in her big grey car after tea.
Saturday at Nana's house it was nice and sunny and I played in the garden. I had some lunch and walked all the way to the library. I chose my books but was too tired to walk up the hill to their house. I felt better than before but was still tired and felt a bit sick.
Sunday I started to feel better again and I went to Sunday School and saw my new friends. We played with bubbles after church. I ate lots of lunch, Yorkshire puddings and chicken drumsticks and after lunch we went for a little drive and a walk. I like the sun shine a lot!
Mum Says: It never rains but it pours. Unfortunately whilst I was in Gibraltar my Aunt died and our flights coincided with her funeral so we arrived to an empty house and a bit of a strange mix of emotions. I know we are now on the last part of the treatment which will mean staying long term in the UK. I also know we are facing a difficult time as Alice is already getting worse again and withdrawn more like the start of her treatment. I think every side effect they have listed we have had to a greater or lesser extent. mostly mild side effects. I have to be thankful for that. Unfortunately she is blaming everything on her NG tube including hay-fever which brings it's own set of problems. Although she has her down moments and is obviously getting fed up and is ready to go home and will tell me that she will stay sick and stay at home instead of coming to UK for treatment. She also has her up times and is still smiling.
Thank God for family and their support I couldn't even begin to imagine doing any of this without them!
