31st March to 6th April - INTERIM MAINTENANCE - Week 11

31st March to 6th April

We've had Easter now, it was a good day we were all at home together which was really fun and Mummy's friend came for lunch and her little boy, who is the same age as my big brother Joe. I played chasing them and I had lots of energy to play because I'd eaten lots of chocolate. 

On Monday we had to get up and go to the airport. I did ask if it might be okay for me to stay at home and be ill instead of having to go back to England. Mummy and Daddy want me to get better so I had to get my bag and fly back to England. Lots of people came to the airport to see me and say goodbye and by the time we got to the aeroplane I didn't really mind going. I did get grumpy on the plane but I had a little sleep and woke up much better.

When we got to England Mummy and I got the train to Huddersfield and my Uncle came to collect me from the station. When we phoned Nana and Grandad to tell them we were on our way I shouted 'Nana I'm coming' so loudly I don't think she needed the phone to hear me!

Tuesday was a quiet day, settling back in to my England home ant Nana and Grandad's house and getting ready for the hospital on Wednesday.

My uncles were both away so Nana, Mummy and I got the train to the hospital. It was quiet exciting as I hadn't been there on the train before! My pushchair broke when we just got to the hospital! Lucky it lasted that long! Mummy said that later she would go and get a new one whilst Nana stayed with me. It was a (Immunoglobulin) 'Globlin day'. The doctor had some very exciting news for me when they last tested my blood there was no more parvovirus in it and that means that I am feeling much better and that my blood doesn't keep getting so poorly that I have to have a transfusion. Hurrah!

The rest of my week has been quite quiet. I have helped my Grandad in the garden and I have been to the supermarket, I went to messy church on Friday and learnt all about Easter, which was fun. I did lots of sticking and some singing. Best of all Mummy has taken me to the library and I have borrowed some books, I have to take them back and I got some DVDs too. It is very good. I'm going again next week to choose new books and DVDs. I am trying to watch the films as many times as I can before I have to take them back and I have the stories every night for bed time; I am only borrowing them after all.

Mum Says: It was hard to leave the family again but it had to be done. It was harder because I now know what I'm going back to and Alice isn't as even tempered and easy as she used to be, she is also more clingy and demanding now, totally understandably of course. Whilst she is well and we have time on our own I am working on some of the more diva-ish behaviour. Although there are aspects of the new behaviour we can't do anything about as it is due to the drugs. Like her strange new diet and food cravings, I hope it is the treatment that is causing it! Alice is doing really well now and has energy to spare, the fact that her last blood test was clear of the parvovirus was such a relief, it was obviously a relief to the doctor to as she is now much more relaxed about the possibility of us having a 2 week break in Gibraltar before the intensification starts! ... I am trying not to count the days 4 weeks is a long time for a sick child and a lot can change.