22nd April to 3rd May - INTERIM MAINTENANCE - Weeks 14 & 15

22nd April to 3rd May

Well I have had a bit of an exciting time because I've had a week off from hospital and I got to go to a Birthday Party! My little cousin was 2. I got to go to her house and I helped her open her presents - even though she probably didn't really need my help. I got to play with her new toys and her friends, we made pizza for our tea and decorated biscuits, danced around and my Uncle made a yellow birthday cake just like my cousin had asked for. I had so much fun and I was very tired at the end of the day!

I missed Surestart so that I could go to the party but I got to go to the library and Sunday school like normal. I almost stayed at Sunday school on my own but I decided in the end that Mummy should stay. I played in Grandad's garden as much as possible and Mummy seemed to be busy sorting out my clothes and things and my toys too which was a bit puzzling to me.

 

On Monday my Uncle took me to the hospital with Mummy for and 'Echocardiogram' to look at my heart and test it and measure it so that they can see if the drugs I have later on affect my heart as they might. They put jelly on my tummy and chest and neck to see everything, Mummy said it was like they did to her when I was in her tummy. I didn't really like but my Uncle came in with me as well as Mummy and I think they thought it was quite interesting.

On Wednesday when I went to the hospital it was the last time I had to have my 'gobulins' (IVIG) and the Doctor told Mummy and I that I could got on holiday to Gibraltar and the lady from the Pharmacy bought all my medicines for my holiday and explained that I will have a week off and no medicines except for antibiotics for a week, that is very exciting, not only am I going home but I'm not going to have medicine! The hospital took a long time but Mummy and I were too happy to care.

When we got home Mummy had to arrange our flights with Gibraltar and pack, although I think she had packed lots just in case already. We did have a bit of a problem on Thursday as I was playing in the garden Mummy fell over and hurt her ankle. Grandad took her to hospital in the car and I stayed with my Auntie and played with EVERY toy in their house and then we played in the garden. Mummy didn't even get a bandage on her ankle but had ice on it and put it up on the sofa.

We had to get a taxi very early on Friday morning and I woke up to go on the aeroplane, it was very very exciting to get up in the dark and we even had breakfast at the airport before the flight. Hurray! I did have to go to sleep on the plane because I was very tired by then and when we arrived at Malaga Daddy and Toni were waiting for me. I shouted all through the airport Daddy I'm coming!  

Mum Says: It has been nice for normality to set in ... well as normal as things can be for us at the moment. It was lovely to be able to celebrate my Niece's 2nd Birthday with her and for Alice to be doing something normal! I did suspect when we went to the hospital that Alice's blood counts were going to be a little low, which they were, but to still be able to go home for 2 weeks was a relief and made both of us really happy. I was rather concerned when I fell in the garden and hurt my ankle as I was sure I'd done something pretty bad as it swelled immediately and my toes were numb. Fortunately it was a bad sprain and bruising and I took plenty of pain killers put on a bandaged and ignored to Doctors 'rest' and got on the flight ...well I can rest it in Gib' :)