21st July to 4th August - MAINTENANCE - Weeks 27 & 28

21st July to 4th August

I have had lots of fun with Joe and Toni so I was sad when Toni had to go home. Joe is still here to play with and we are getting in trouble for being too excited and silly.

When I went to hospital on Wednesday Joe decided to stay with Nana and Grandad as I had to have a sleep. It is always a long day when I have to have my magic milk and injection in my back but they put me first on the list!! I was finished by lunch time and we were home in no time at all ... Well compared to normal hospital days. When I got home Joe was still out with Nana they had gone to Scarborough for the day.

As a treat for Joe and me my Auntie invited us to stay at her house for a week! With Mummy too. It was lots of fun being somewhere different and going out to new places everyday, we went on boats, little trains and to parks. We played in the gardenn, practised our tennis and basket ball. Mummy and I went exploring whilst Auntie and my Cousin took Joe to play golf and we went to see my big cousin at her work and I played with their cat everyday even if he didn't want me too. We even went on a as pecial trip to the zoo.

I am getting better now at being left alone by Mummy I let her sit in a different room from me and everything at Aunties house. I even went out with Auntie on my own and Mummy left me and went to the hairdressers with my cousin. I am feeling less grumpy but I do wish sometimes the grown-ups would listen to me more when I'm shouting at them. I am very important!

Mummy and I had both been feeling a bit fed up because we didn't really know what was happening about going home because my blood count just wasn't good enough after my intensification. But when Auntie took me to hospital after my week at her house we had very good news I could finally start on my daily chemotherapy which I am going to have to take for the full 2 years of maintenance oh and my green medicine on Saturdays. I had been waiting so long to start the medicine that I was so excited.

My big cousins and been treating Joe to a trip to the cinema and a pizza whilst I was at the hospital so we all met up at Nana and Grandad's house they were pleased for me too. 

I think Joe has liked staying at my Aunties house too because my cousin has a play station 3! It has been like a little holiday for us all.

Most exciting is that Daddy is coming to stay for a week.

Mum Says:  Toni has gone back to Gibraltar with a long list of jobs to do to get ready for University. I'd always assumed that I would be around to help her when the time came but she has shown that she is perfectly capable of doing all this on her own as well as work and cook meals for her Dad and Brother. We were all getting down as we were hoping to be going home in August so a break at my Sisters it what we all needed and Joe got to spend time with his cousins as well as getting spoilt by his Auntie and finally we have started on the maintenance med's which means that we can start to look forward to getting home and now need to sit down and see when we will be able to get home and with Gareth's visit too we are all feeling a bit more optimistic!