21st October to 3rd November - MAINTENANCE - Weeks 40 & 41

21st October to 3rd November

I started back at school on Monday and came home with some bruises, Mummy kept an eye on me and on Tuesday it was the same. So when i went to the hospital on Wednesday Mummy asked if they could do a blood count because I wasn't very well, I wasn't supposed to have one.

It was all a bit surprising to find out that everything was low and that I'd need a blood transfusion. We had to wait for my blood to come from England because of something special and I couldn't go back to school. 

On Friday I had the transfusion and felt so much better AND it was the start of half term so even Joe was happy!

I liked half term because Joe stayed at home with me everyday and we did exciting things. On Monday we went on a boat trip in the

bay and saw the dolphins. On Tuesday and Friday Joe had a friend over to play on Wednesday I had to go to the hospital and have my monthly chemotherapy in my wigglies. When they did my blood test it wasn't completely better so I don't have to take my brown medicine every day which means I can eat late! 

Thursday it was Halloween and both Joe and I went to parties!

I've never been to a Halloween party and I liked it a lot I wore my snow white fancy dress which is my best favourite one and my Cousins came too. We had food, but I didn't really want to eat and then we played games. The lady who arranged to party made us dance and do silly things. They made my Mummy wrap a lady up in toilet paper like a mummy. But she wasn't very good at it.

Best and most special of all they gave me a prize, a silver trophy, for being a brave girl and taking my medicines nicely and going to hospital and being good. I was feeling very tired but getting the prize was so special I didn't feel sad or tired any more!

Joe and Daddy liked my prize a lot. I can't wait to go to school and tell them about my week off I am feeling so much better. 


Mum Says: It has been a bit up and down for us. Alice was getting quite low and when her bruises started appearing we thought, here we go again. It wasn't quite as we thought in as much as she didn't need platelets but she was very anaemic and needed blood so we had an afternoon on the ward hooked up or caught as Alice likes to say. I think we spend too much time at the hospital at the moment and hope that this last unexpected trip for some time. We want only scheduled trips to the Hospital for a while at least. Having said that the blood seemed to have done Alice nothing but good, she isn't napping in the day and is bright and interested. She is also off her daily chemotherapy which also helps to perk her up and she is making the most of late snacks before bed and milky drinks. The Dolphins should have been the highlight of our week how many people can pop out for an afternoon and a boat and see dolphins? But the Halloween party trumped it all. Alice was so thrilled with the prize and having her photo taken with the lady that organised they party. I don't think they will every know how happy Alice was (and still is) to be singled out in a positive way after the year she's had she really does deserve a prize!