Long May This Continue! - Maintenance - Weeks 61 to 64

19th March to 9th April

Life has been good. I have been well and in school and have had my second month following protocol. We have even managed to go out and meet up with friends and I went to my first class birthday party! I've been on 100% of my medicines all the time and when I saw the Doctor for my Vincristine he told me that it was looking like I'm almost clear of the Parvovirus!

I missed school and caused the usual mayhem and destruction at home whilst on steroids. I find it very hard to sleep when I have them and get very tired and bad tempered, I have been trying very hard to control my grumps and keep them put away but when I have the steroids I'm not very good at managing it!

The most exciting thing though that happened this month was my trip to England and to the hospital in Leeds. It was exciting because I have been so well. 

When I actually went to the hospital it was a bit funny because my normal Doctor wasn't there and I don't get to see her very often now because I'm mostly in Gibraltar. But my Special Nurse, key worker, wasn't at the hospital either! Which did mean Mummy didn't talk and talk and talk! I did see a lady called a physiotherapist  because after my monthly injection of vincristine I walk on my tip toes and it was worrying Mummy a bit. When I go home I'm going to see another lady about it and I'm going to need something in my shoes to help me walk better!

I had my IVIG at the hospital and my big Cousin came to see me and it was a bit of a worry when I got a temperature. But it was all OK and I went home in my Uncles car not to bed in the hospital

When I was in England I went to Ducklings and played with my little cousin. We even went to her singing group funky monkey and got to wear funny monkey hats! I stayed with Nana and Grandad and I ate all their nice food and played with Nana's toys and art stuff. Mummy and my Auntie went into town for an afternoon without me and my cousin mostly because Joe has grown out of all his clothes for the summer! 

I like going to England and seeing my family especially when I feel well!

Mum Says: Apart from the concern about Alice's temperature on the day of her treatment in Leeds we have had another very normal month (well as normal as it can be) Alice is well and has done some serious growing over the last few weeks whilst she has been well. Unfortunately we've had a bad sleep month with the steroids and our trip to England, Alice gets very clingy and doesn't sleep well on her own when we are in England and it lasts a couple of weeks after we get back but still that is something for us to deal with over the next few weeks. In the mean time we are enjoying the ordinary-ness of going to school and looking forward to the school holidays!