I get grumpy too! - Maintenance - WEEK 69 - 72

14th May to 10th June

We have had another month without a hospital stay, although this month I have been neutropenic and a little bit anemic, I've had extra blood tests this month but I don't mind going to see my friends on Rainbow Ward, especially as blood tests don't take very long.

I am starting to have a few problems with my walking and when I go dancing I can't skip or jump anymore, not like I used to. But I don't mind because I am going to have a sparkling costume and dance on stage like my cousin. Well not quite like her because she has been all the way to Croatia with my dance teacher for a competition! But I am still excited. I can only do the show for one night because I am going to be in England seeing my Doctor and family the same week as the show.

I have also been having trouble keeping my grumps in this month. It might be because I am very tired because I am so busy. I have been trying my hardest to be good but I did draw Mummy some friends on the wall in the hall. I have asked my imaginary friend Matthew to live on the balcony because he is a bit naughty and encourages me when I feel a bit mischievous.

Both Mummy and Daddy have had their birthdays which has meant I got to make them presents and eat cake we even took Daddy out for lunch on that day we went to see a big boat called HMS Defender and I got to try on army hats and touch guns and run around. I even sat on a helicopter.

I have  been to a special Birthday Party for my friends the triplets. They were born a whole year ago when I was very sick in hospital and now we are all at home and causing trouble!

The very most exciting thing to happen this month is that my big sister is home from University!





Mum Says: Life is starting to return to normal or maybe we are used to our new version of normal. Alice has been well. We can see the effects that treatment is having physically and emotionally on Alice but hope with a positive attitude and support we can get her through this and get her back on track, if not now, over the next few months. Alice has shown such strength of spirit and determination over the last few weeks, wanting to be 'normal' dragging herself off the sofa to go dancing. Getting up and out everyday for school! She makes it impossible to be anything but positive about her future. We are also getting more relaxed about crowds and being around people with Alice having managed the beach, park and a couple of birthday parties we finally felt able to risk crowds of tourists as well as locals on HMS Defender! And to top it all off Toni is home and we will have her until September! Finally some proper family time.

My Birthday Present painted by Alice