We haven't been writing in our blog because life has been, just Normal.
I have done all the normal things children do when they are 4 and getting on with life. We spent at least one day a week on the beach during the summer and I saw my cousins and went to the park to play. I even went for the day to my Aunty's house in Spain to her pool! My big sister was home and she played with me and it was fun to be a family again all together.
I started in Reception in September and have been busy making friends. I have been to England to the hospital as usual and I even have a new baby cousin in England to visit.
We have been to my hospital appointments and haven't had to have lots of breaks or any stays over night at the hospital.
I have been to party's dressed up and played like my friends all do. I've even managed a haircut! I tried to keep up with dancing but it is too hard as I am tired and busy learning at school. I am trying to walk more and have even started sleeping in my own bed at night. I am less anxious now as we get on with things like everyone else
Mum Says:
We have spent time over the last few months building up some normality that doesn't revolve around hospital appointments but around family routines like everyone else. We had to make allowance like going to the park late in the evening or early in the morning to avoid over exposure to the sun etc.
Gareth has started working shifts which brings its own set of challenges for a family used to Monday to Friday 9 to 5! There are positives to this new way of living as we have manged to spend more time together something that we needed after the stress of living apart and Alice's illness.
We have had celebrations this summer as my parents have managed 50 years of marriage and a new niece was delivered safely into the world in August.
But I think the most positive change has been with us and the fact we are now counting down in weeks to the end of Alice's treatment.
I have done all the normal things children do when they are 4 and getting on with life. We spent at least one day a week on the beach during the summer and I saw my cousins and went to the park to play. I even went for the day to my Aunty's house in Spain to her pool! My big sister was home and she played with me and it was fun to be a family again all together.
I started in Reception in September and have been busy making friends. I have been to England to the hospital as usual and I even have a new baby cousin in England to visit.
We have been to my hospital appointments and haven't had to have lots of breaks or any stays over night at the hospital.
I have been to party's dressed up and played like my friends all do. I've even managed a haircut! I tried to keep up with dancing but it is too hard as I am tired and busy learning at school. I am trying to walk more and have even started sleeping in my own bed at night. I am less anxious now as we get on with things like everyone else
Mum Says:
We have spent time over the last few months building up some normality that doesn't revolve around hospital appointments but around family routines like everyone else. We had to make allowance like going to the park late in the evening or early in the morning to avoid over exposure to the sun etc.
Gareth has started working shifts which brings its own set of challenges for a family used to Monday to Friday 9 to 5! There are positives to this new way of living as we have manged to spend more time together something that we needed after the stress of living apart and Alice's illness.
We have had celebrations this summer as my parents have managed 50 years of marriage and a new niece was delivered safely into the world in August.
But I think the most positive change has been with us and the fact we are now counting down in weeks to the end of Alice's treatment.
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